Taylor's funeral

Taylor's funeral was held on August 4 at noon. It was held at the Wasatch Lawn and Memorial park. The service was very nice and I think that Taylor would have liked it. Brett and I both spoke and then the grandparents were given the opportunity to say a few words. We then buried him at the same place the services were held. The family actually did the burying and it was very nice. There was a very real sense of peace and calm and closure. The casket was made by Taylor's Father, Burton uncles, and Pop. It is beautiful. Polly made the lining for the casket out of material that was nearly identical to Blue. Taylor rests in a very serene place, beside a tree. We chose the spot specifically because of the tree. I wanted him to have a beautiful setting and it truly is one.

Taylor

It has been a few weeks since I ave updated this. Taylor was in the hospital for a while and I was with him while he was there. He had a hernia repair on the 18th. He came home the 19th just fine, and was back in the ER by the 22nd. He had aspirated and his left lung was collapsed, and his right one was mostly collapsed. Hewas intubated, which means that he was put on a ventilator, right away in the ER and moved to the Pediatric ICU. HE came off the Ventilator twice inthe 9 days that we were there, but failed both times. He was reintubated both times. The second time, on Wednesday the 30th, Taylor had a scope of his airway and lungs done. The ENT found multiple problems with his airway that would have required extensive surgery, the placement of a treach and many future scopes. The problems were that Taylor's throat was scraped raw inside and also that his vocal chords were damaged. Reflux was continuing to worsen these problems. Further down he had a blood vessel that bisected his chest horizontally. This is not normal. It was restricting his lower airway to a large degree, possibly cutting it off sometimes. Further down there were many many secretions in his lungs that they were having a hard time cleaning out. When we heard this information, we knew it was in Taylor's best interest not to have the surgeries. It was just too much. The doctor who performed the scope met with us after returning to the PICU and made sure that we understood everything correctly, and told us that even if we did the surgeries, he was not optimistic about Taylor's airway ever being able to support him or totally support him again. Following the surgeries there would be so many follow up scopes and possible other surgeries on top of those and the others he would need for the rest of his body. Brett and I decided to let Taylor leave this earth rather than continue on the Ventilator indefinitely or have these surgeries.
Our family rallied to our sides and nearly everyone had the chance to say their goodbyes. It was a time of extreme reverance and love. Taylor knew he was loved and that all of his family, whether they could be there or not, loved him deeply and he loved them. After most everyone at the hospital was able to hold him one last time, we put him in the crib so everyone could say a last goodbye there and then everyone but Brett and I and the nurses and doctors left. We held Taylor while the tube was taken out and the nurse administered medication to keep him comfortable. We held him as he gently left us. It was sweet and peaceful and a blessing. He didn't stay long after the tube was gone, so we knew he had been ready and that Heavenly Father was calling him home. We of course were sad, but we are happy for him and know that now he can play and move and eat and breathe like other children. His beautiful little body was perfect to house his spirit in for his short mission here, but had limitations that he does not have now. We bathed him and had pictures that "Now I Lay Me Down To Sleep" did for us. It was beautiful. The funeral will be on Monday August 4, at 12:00 pm at Wasatch Lawn Memorial on 3401 Highland Dr.
We will always miss him, but have been so blessed to have him in our home, family and lives. Thank you to everyone who has supported us and helped us. We love you all.